Well, my breezy (hoping to be positive) dismissal of the news about the positive toxoplasmosis IgM yesterday afternoon was so much drivel. I couldn't leave well enough alone and called Mr.Right about 4:40 p.m. right after he finishes with patients and just before I was due on a video-conference at 5 p.m. I guess I was expecting him to be his usual rational, positive self - in other words to talk me down, telling me that false positives are quite common and that's what this probably was.
Instead, he took it really badly. And it just went downhill from there. We had to wait to talk longer after I was done with my video call about 45 minutes later. He confessed he had gotten nothing productive done in those intervening minutes. We both started googling. He doesn't order toxo screens so he really didn't know much about them.
And it got worse. Yes, there are false positives. To an extent that ACOG recommends against routinely screening pregnant women because of the anxiety that can be caused by false positives. But, somehow, that didn't comfort us. We went on to read about what the likely course of re-screening will be. After this initial titer is done from blood today, in order to confirm a positive, in 2-3 weeks there will likely be a second titer done. If the IgM rises or if IgG shows up (meaning I've developed antibodies) that means it's a real positive. So, we're probably looking at at least another 2-3 weeks of uncertainty about this.
And then we read on to the risks to the baby. The lowest risk of passing on the infection to the baby is in the first trimester (only 15% of the time does it get passed on) but if it does get passed on in the 1st trimester the biggest risk to the baby is then. It affects brain and nervous system development.
During an amniocentesis, the amniotic fluid can be tested to see if the infection has been passed on to the baby, but only first at 18 weeks.
All we could keep thinking was that where we might have been released from uncertainty once the CVS FISH results were back (hopefully next week) we'll now be in suspense, if this is real, until many more weeks about whether this is a baby we can keep. I think that's been the most devastating thing about all of this: realizing that the uncertainty about the viability of this baby may go on yet for weeks.
And it just seems SO unfair. This miracle baby that we never expected. Our last chance to have a child genetically linked to me before we move on to donor eggs. And we've screwed it up.
No, specifically, I've screwed it up. If this is real, I've managed to get myself infected. We have a cat. But she never goes outside and I haven't changed the kitty litter in two years since Mr.Right has an extremely limited sense of smell and doesn't mind it. No birds. I haven't been digging in the garden where there might be cat feces (I've never even seen a cat in our yard.) But, I wasn't perfectly cautious with rare meat. I know I had a steak on our anniversary before we knew I was pregnant. And we like our steak rare. And I know I had a pretty rare steak after I was pregnant. I know, I know. I shouldn't have. But really? I go 40 years eating rare meats and never contract toxoplasmosis (I know I never have because my IgG is negative for antibodies) and within the span of 10 weeks of pregnancy I eat something that infects me? It beggars belief.
The most hilarious thing (in a bad way) is that this anxiety over this result has totally knocked the anxiety about genetic abnormality off its pedestal. I was working that anxiety up coming into this CVS test on Friday. But I'd come to a place where I knew I couldn't have done anything about a genetic abnormality (except not get pregnant with my own eggs.)
Consequently, I slept not a wink last night. I did doze a little bit before Mr.Right came to bed at 11 p.m. but woke up then and never got back to sleep. I read the entire NYT Sunday Magazine. I read my book ("The Corrections" which I'm really rather fed up with) and then went downstairs and watched 4 tivo'd tv programs back to back. Back upstairs to read and try to sleep and ended up sitting in upstairs hallways at the top of the stairs staring into space. I just couldn't stop my mind from reviewing every possibly way I could have gotten this and how it was all going to play out.
It's going to be a horrible day. Mr.Right was still really not good this morning. It makes me so scared that he's taken this so hard. It means he's not going to be here to buoy me. I'm going to have to do it for myself. I honestly don't know how we're going to make it through the next few days and potentially the next 6 weeks.
I never pray and I know my now-desperate appeal is probably just going to be dismissed, but I prayed so hard to God to save this baby. I don't know what else to do.
Mike got a job and other updates
6 years ago

Oh sweetie, I'm so very sorry that you have to now deal with this too, on top of everything. But please try to stop blaming yourself. You have done everything possible to avoid this by appropriately avoiding the litter box and digging and such. And I find it VERY hard to believe that this is all from one or two rare steaks. Seriously!!! I have everything crossed for a false positive. But I hate that you have to worry about this, on top of everything, now. Sending you a hug...
ReplyDeleteI can only imagien hwo difficult last night was. Do not feel bad for calling Mr Right, and as Alex says, please do not blamer yourself. This si not your fault and I while I hate that you have to wait so long for a new test/results, It is my hope that you are deaing with a false positive and all of this can go away. You are right, it is not fair, if anyone deserved smmoth sailing during their pregnancy it was you.
ReplyDeleteThere's not much I can to ease your mind, so just keep praying, and I will be doing the same. xoxoxoxox
I'm sorry about this. You can't blame yourself. Seriously, you have to live. and not in a bubble. How did you even come to be tested for that? I looked back on a few posts which I have already read and couldn't find mention of this test. Do you have some symptoms?
ReplyDeleteI worry every time I eat out that I will get sick. It sucks. I will really be crossing my fingers for you.
I am so sorry about this new fear! You have been through so much already. I echo the other commenters here in beseeching you not to blame yourself! You have done everything right. I am betting on a false positive. But the fear must be overwhelming. I'm really sorry you have to go through this.
ReplyDeleteOh sweetie, I am so sorry to hear this. I need to tell you first that this so not your fault. You did everything you could possibly do and there is no to have zero risk. I played this game too with my pregnancy with baby H, thinking it was the drinks I had before knowing I was pregnant. Please let me know how we can support you. You can email at cgd.adventures@yahoo.com. Pregnancy after losses like ours are just impossible, I can't even imagine.
ReplyDeletethinking of you and sending you lots of love.
I'm so sorry. The only good thing about waiting during pregnancy is that it's finite, but when the date is pushed out and out and out, it becomes unbearable. This is a wrench you did not need, or deserve, and I'm hoping so very much that it was a false positive, and that when you are retested NEITHER turns up positive. That amnio becomes moot at that point. But I know that even being aware of the large number of false positives is cold comfort to you right now.
ReplyDeleteLike other wise commenters have said, this is NOT your fault. Hugs to you.
This really sucks but you can't blame yourself. I know that is easier said than done but I doubt (like the others) that eating a couple of steaks could cause this. I really wish you didn't have to wait so long to find out the answers. Especially since you are already waiting for the CVS and FISH results. It's very unfair and you don't deserve any of this. I'm so very sorry.
ReplyDeleteoh lordy. I wish I knew a damn thing about this IGM IGB, but I don't. You have done nothing wrong, and I do know that.
ReplyDelete((hugs))
Oh dear God..this cannot be happening. Are you on prophylactic antibiotic just in case it's a real positive? I have a friend who did get the toxo during pregnancy, very early on, and was on spiramycin till the end of the pregnancy (it's unlicenced in Ireland but may be worth finding out if you can source it there). Baby is totally fine. Can you not get results a bit quicker? It seems like an awful long time you have to wait. I think it's a false positive. I truly think so. Love, Fran
ReplyDeleteHey--Just so you know, I tested positive for this and got the second test and tested positive, too. So I had the infection at some point and then developed an immunity. DO NOT fret about this. Most likely it is nothing. I know how desperately you want (and deserve) this baby, but it is not time to think it is over yet. Wait for the 2nd test results. Likely they will be fine. They are 99% of the time.
ReplyDeleteUgh, I just hate that you are going through this. Thinking of you.
ReplyDeleteI am thinking about you and praying that everything will be okay for you. Toxo can happen but pretty uncommon.. I have not encounter a case in my 12 years of practice and I specialize in pediatrics- birth defects.
ReplyDeleteI am so horrified to see you saddled with this. I cannot imagine what the wait is like. The 2ww pales in comparison. I am so sorry.
ReplyDeleteRead up on the comments where people have survived this and identified the uncommonness. You can too. There is no sense in this happening only to have this hurdle. It just makes no sense.
P.S. I wanted to write that I was sorry. I had misread the prior post and thought you hadn't done the 2nd test. I know this is hard after finally getting your long awaited babe. I will tell you this...they told me my son had a 75% chance of being down syndrome or having something else horribly wrong b/c he had interuterine growth restriction...he turned out fine. Sometimes, I think there is so much info out there. Again, I'm sorry for my earlier response!
ReplyDelete