Pages

Saturday, January 8, 2011

Appointment with my sister

The appointment yesterday afternoon with Dr.Dry and my sister went well. Unfortunately, Mr.Right wasn't there (he was at a work-related meeting out of town), but it was pretty straightforward so I don't feel like he missed all that much. As expected, the visit was mostly about my sister and Dr.Dry getting her history since he knows far, far too much about my history already.

And my sister's history is pretty straightforward too: 2 pregnancies, both resulting in live births (and two cute nephews if I say so myself!) I found out that they got pregnant the first month they really tried (I'm not sure if that was both times or just for the first one; I seem to recall she told me that she got a positive pregnancy test the weekend of my wedding, but then got her period 2 days later - however was pregnant the very next month with her second child). Her cycles have returned and returned normally. So, she seems to be a good candidate, albeit with the caveat that she is 36 1/2 and so probably has the normal rate of genetically abnormal eggs for that age. (Oh yeah, and no need to remove her copper IUD, yay!)

The next step for her is to get bloodwork (FSH, LH, estradiol) and ultrasound (antral follicle count) on CD3 which should probably be early the week after next. (Interestingly, we're actually sync'd up with our cycles right now). That will determine whether we move on with her eggs.

In the meantime, for me, Dr.Dry started out the visit saying he was a bit on the fence about having me get a thrombophilia workup done and a hysteroscopy. We had long talked about doing the thrombo panel but had never done it. Obviously, I've carried a pregnancy for 13 weeks (which was terminated by us, not by miscarriage) so there's at least some indication that I don't have a clotting problem. But it's kind of one of those 'well, if we're going to put my sister to all the trouble (and we're going to go to all the expense) let's just make sure every last thing is ok with me before transferring those embryos to me' kind of decisions.

The story on the hysteroscopy is pretty much the same, although with a shared-risk wrinkle. I had actually asked Dr.Dry about having a hysteroscopy after my last D&C and he said at that time as we were preparing to try IVF with my own eggs again, that a repeat HSG would be sufficient to look for any damage from the D&C (and plus, an HSG can sometimes be therapeutic, helping to clear out the tubes, as it were). So, I did a repeat HSG. The doc who did it did find a small area in my uterus that was a bit 'ragged.' But it was minor and the assumption was that it was probably a bit of scar tissue from the D&C, but nothing that would likely affect the ability of an embryo to implant.

So, again, doing the hysteroscopy now would be a kind of extra effort to make sure all of the effort my sister and we are putting into this cycle won't go to waste. But then we talked about qualifying for shared-risk with my sister as donor and while it's mostly my sister that they'll look at for qualification (basically her day 3 results) he then said that we would need to do the hysteroscopy to make sure I wouldn't be the disqualifier for shared risk.

I'm not entirely thrilled about the hysteroscopy after yesterday afternoon, however, since Dr.Dry, in the course of explaining why they don't do many hysteroscopies anymore, explained that he felt it was unnecessary to put patients through the pain of a hysteroscopy. And that they were sort of a 'pain' to do in the office since they don't use anesthesia apparently and if they do find something they need to fix apparently they have to stop and send you to the surgical center to complete the work. Ugh. But, I know I tolerate pain pretty well. He basically said I'd just need to take a bunch of advil and just kind of grit my teeth for 5 minutes. Lovely.

Any hysteroscopy experiences welcome - even painful ones. At least I'll be prepared and maybe even pleasantly surprised if it doesn't turn out to be painful. (I always read people's stories of painful IUIs or mock embryo transfers and think, what are they talking about? I felt absolutely zero pain in any of those procedures. Maybe some minor discomfort but no pain. And I haven't filled a Vicodin prescription after a retrieval yet. In fact, I'm not even sure I took a Tylenol after last retrieval.)

So, I'm off to the lab on Monday to get blood drawn for the thrombo workup and I'll get the hysteroscopy done between CD5 and 10 of next cycle. I might also just start on OCPs this next cycle which would allow me to get the hysteroscopy done at any time and perhaps preserve being 'in sync' with my sister. Not quite sure yet if I want to do that. It would mean that we would give up getting pregnant on our own next cycle. (Which, of course, has a less than 5% chance of happening anyhow probably.)

My sister won't start OCPs until the cycle after next, so that really puts us at mid-March for the start of her stim cycle. We were pretty much expecting that kind of timing. I guess there was a little bit of hope in me that she might start on OCPs week after this coming week, but there's still the psych testing, counseling session and a bunch of other stuff that has to be done.

Finally, either my sister or Mr.Right (we still have to confirm with the donor office people whether it has to be my sister) has to do genetic testing which, apparently, is now done via cheek swab!! I asked about this since when I started at the clinic in August 2009 I had blood drawn for all of the genetic testing they require for IVF. And now they can just do a cheek swab and get a lot of that apparently. Has anybody had this done? Apparently, it's pretty cheap as well and most insurances now cover it.

I've still got to sort out exactly what permutation of known donor/shared risk/all-inclusive payment plan we're going to go with. I filled my sister in after the appointment about shared risk. I told her that even though that would give us 6 fresh cycles, we didn't expect to ask her to do more than one cycle. If it's really true that we can pull out at any point and get all but $6k back, we would do that. Otherwise, we'll just pay for a single cycle. Which would be more expensive if it doesn't work because either way we'll be moving on to shared-donor/shared-risk anonymous donor eggs at $30k, but like I said in a previous post: screw it. It's worth it to try once with her eggs.

So, we wait for my sister's CD1 so we can call and get her in for bw and us on CD3 (or CD2 or CD4 - they don't really care). I'm planning to go over to my sister's house the night before her CD3 appointment and stay overnight so I can help either get the boys to daycare in the morning or go with my sister to the appointment if she wants me to, or both. We'll figure out what works best based on the time of her appointment. Fortunately, our clinic has an office pretty near my sister's office.

Phew. A lot of info. But no real surprises. So far, so good.

12 comments:

  1. wow. So glad you guys are up and running. Very exciting, although I am sure a bit over whelming.
    I carried a pregnancy to week 15 (and then terminated) but turns out we found a blood clotting disorder after the fact anyway. strange I know. I am glad they are running the pannel just in case. I have no advice on the hysteroscopy but I would want to do it before a donor egg cycle for the same reasons I asked for a lap after my third ivf cycle. Just in case.
    good luck to you. I am crossing every possible body part for you.

    ReplyDelete
  2. Wow, this is moving so fast, or at least it seems like it from an outside perspective. I am getting excited for you!!! I had a hysteroscopy many moons ago, but they put me under for it, in case they needed to remove anything during. I was told to rest afterwards and I did just because I was groggy from the anesthesia, but I dont recall being in pain or discomfort afterwards. I am interested in the thrombophilia - I'll have to research that and see if it's worth testing for before we pursue IVF.

    Good luck, sounds like your sister is a wonderful candidiate considering her history and I really really really hope this is your last stop on mission mommyhood.

    ReplyDelete
  3. Ah, the hysteroscopy. I had two. The first was in the hospital and, although I was uncomfortable afterwards, it was ok. My RE thought she removed all my scar tissue and I was good to go. Cramping after, but nothing major.

    I went for a follow-up hysteroscopy in the office. Nope, some scar tissue came back. She started to try and remove it there and I flipped out. Cutting things out of me while I lay there...nope. Nope. So, back to the hospital I went.

    The second time involved a balloon being put inside me and I was put on estra.ce afterwards, to make my lining "extra thick" so that the scar tissue didn't come back. The balloon was awful. There was a tail sticking out of me and everything. But, it did the trick.

    So, just know that sometimes scar tissue grows back relatively quickly and it could require a second one.

    I do remember some women saying they were given something stronger than Adv.il to take before their office hysteroscopy. Perhaps that's something that could help.

    Please keep us posted.

    ReplyDelete
  4. So glad everything is moving along well. I am too glad you are getting the bloodwork. I found out I had a blood clotting disorder after my full term pregnancy- finally had bloodwork done as a result of a visit to the ER when I had trouble breathing at 36 weeks. I had two early losses and had taken baby aspirin on my own during my successful cycle. My RE did not believe in this but I did it anyways. I am still on blood thinners for 9 months post partum. I hope your hysteroscopy goes well. I have not had this procedure. I hope it goes smoothly. I am cheering you on.

    ReplyDelete
  5. I've had two office hysteroscopies. No big deal; cramping during the procedure and some after. I've also had an HSG and saline sonohysterogram and found both those procedures to be more uncomfortable. I'm also starting down the road to DE for March. Best wishes!

    ReplyDelete
  6. Yeah, totally do the hysteroscopy. You want to cover all your bases. I was knocked out for mine, and when I woke, I had no pain.

    ReplyDelete
  7. Wow, things are moving. I wish you luck!

    ReplyDelete
  8. This all sounds wonderful! My only hysteroscopy was a surgery center one, so full knock-out. I've heard office onese aren't too bad though. I'm so excited for you to move forward!!!

    ReplyDelete
  9. I've had both tests and was all ready for pain etc. If you get period pains that hurt then they are no worse than that.
    It's so exciting that your sister is going to be your donor. Good luck!!
    E

    ReplyDelete
  10. That IS a lot of information to digest, and I will cross fingers and toes that your sister's bloodwork comes back on the superb side. March is around the corner (though, I guess after years of things being "around the corner", nothing really feels like it is anymore). I also think it makes sense to do the thrombophilia panel and hysteroscopy, for all the reasons you cite. (And also for peace of mind).

    Thanks very much for your comments on my blog.

    ReplyDelete
  11. Wow! Things are moving! Crossing my fingers for you -- this would be such a beautiful way to have your first child.

    ReplyDelete
  12. This is so exciting. So thankful for you to have such an amazing sister. Wishing you all the best!

    ReplyDelete